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Arhivi
Register raka Republike Slovenije
To delo avtorjev Marija Primic Žakelj, Vesna Zadnik, Tina Žagar je ponujeno pod Creative Commons Priznanje avtorstva-Nekomercialno-Deljenje pod enakimi pogoji 4.0 Mednarodna
Datoteke (1)
Opis
Register raka Republike Slovenije (RRRS) je eden najstarejših populacijskih registrov raka v Evropi in najstarejša zbirka zdravstvenih podatkov v Sloveniji. Podatki o bolnikih z rakom in njihovi bolezni ter zdravljenju se zbirajo, obdelujejo, prikazujejo in arhivirajo redno od leta 1950 na Onkološkem inštitutu Ljubljana (OIL). Danes RRRS hrani že skoraj 400 t. m. dokumentov, ki imajo pravni status arhivskega gradiva. Register vse bolnike spremlja do smrti, tako lahko poleg incidence prikaže tudi preživetje bolnikov in prevalenco. Ti podatki so skupaj s podatki o umrljivosti osnova za spremljanje, načrtovanje in vrednotenje onkološkega varstva v državi ter podlaga za epidemiološke in klinične raziskave. Ključni podatki RRRS so od leta 2010 elektronsko dostopni na spletišču SLORA, ves čas pa jih objavljamo v rednih letnih poročilih, obdobnih specifičnih raziskavah ter domačih in mednarodnih člankih.
Metapodatki (12)
- identifikatorhttps://hdl.handle.net/11686/41589
- naslov
- Register raka Republike Slovenije
- Cancer Registry of Slovenia
- ustvarjalec
- Marija Primic Žakelj
- Vesna Zadnik
- Tina Žagar
- soavtor
- Gregor Jenuš (gl. in odg. ur.)
- Marija Grabnar (ur.)
- Dunja Mušič (teh. ur.)
- Petra Markuš (prev.)
- Marija Grabnar, Andreja Klasinc Škofljanec in Borut Jurca (foto.)
- predmet
- ČLANKI IN RAZPRAVE
- rak
- register
- arhivsko gradivo
- epidemiološki kazalniki
- zdravstveni informacijski sistem
- ARTICLES AND PAPERS
- Cancer
- register
- archival material
- epidemiological indicators
- clinical information system
- opis
- The Cancer Registry of Slovenia (hereinafter the Registry) is operating at the Institute of Oncology in Ljubljana (OIL) and is one of the oldest population based registries in Europe. It was founded in 1950 and headed until 1975 by the deceased professor dr. Božena Ravnihar. By the time of its creation, the registry is the tenth among all population-based registries in the world, the first one in Europe, and the third in the world among those, which by compulsory notifying, covered the entire geographical area of a population; the Registry is also the oldest collection of medical records in Slovenia. Today, the Registry keeps almost 400 m paper documents which have legal status of archival material. The Registry collects, stores, and processes the data on new cancer cases among citizens with permanent residence in Slovenia, incidences. The Registry monitors patients until their death, thus it can also analyse survival and prevalence. This data together with mortality data presents the baseline for assessing the burden of malignant diseases in the country. The registration of malignant diseases was legally regulated for the first time in 1950. Data processing was performed manually at the beginning, on the big computer in Iskra Commerce Company from 1975 until 1993, the big computer of the outsourcer, Oracle reference data, and their direct input was replaced by Registry’s server in the 1990s,. In 1984, cooperation with Central Population Register (CPR) started. The Registry then started recording the personal identification number, thus avoiding numerous errors on entering personal data. The cooperation allowed monitoring of patient’s vital status. Data of both registers was connected annually at the beginning. Since the renewal of Registry’s information system in 2010, we have established direct online connection with CPR with specially protected internet technology, resulting in daily updates of personal data in the Registry. The current method of notifying about malignant diseases to the Registry is steadily becoming less effective. Due to irregular notifications, co-workers at the Registry spend too much time actively gathering information from providers. In the near future, we plan to gradually transfer the service to eHealth, and the digitalisation of archives is planned in order to reduce overcrowding and facilitate access to material. The quality and currency of reporting would be increased by active registration where Registry personnel obtains directly from diagnostic and clinic records. Additional clinic registers with extended data collection could thus be formed in cooperation with clinicians, thereby allowing more accurate evaluation of the quality of care for cancer patients. Key data of the Registry are from 2010 electronically accessible on the SLORA website, while they are regularly published in regular annual reports, period-specific research, and domestic and international articles.
- založnik
- Arhivsko društvo Slovenije
- datum
- 2018
- 01. 01. 2018
- tip
- besedilo
- jezik
- Slovenščina
- jeDelOd
- pravice
- licenca: ccByNcSa